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Grade 4 IVH
A sudden seizure at 11 days old led to the discovery of a Grade 4 intraventricular hemorrhage.
This is Lizzie
A tiny baby with a very big story.
Our girl’s story began with an unexpected medical crisis at just 11 days old. What followed was a season of fear, faith, surgeries, recovery, and more bravery than we ever knew a little girl could carry.
Lizzie was born full-term in May 2022, our third baby. Labor and delivery were incredibly fast. Eleven days later, everything changed when a sudden screaming episode was followed by a seizure.
An emergency CT scan at Children’s Hospital in Atlanta revealed a Grade 4 intraventricular hemorrhage (IVH). Doctors placed an external ventricular drain (EVD), and Lizzie underwent MRI and EEG monitoring.
When fluid built up again, Lizzie was diagnosed with post-hemorrhagic acquired hydrocephalus. At just 5 weeks and 2 days old, she received her first VP shunt.
She was home about 24 hours after that surgery. Two weeks later, our family moved from Atlanta to the Pittsburgh area and began a new chapter.
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NICU & EVD
Lizzie spent 22 days in the NICU and underwent surgery for an external ventricular drain.
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Hydrocephalus & VP Shunt
At 5 weeks, 2 days old, Lizzie received her first VP shunt to treat post-hemorrhagic acquired hydrocephalus.
